I can already tell this is going to be a long hemophilia related rant. So excuse me for being all scatter brained. I'm sure I'll jump through a lot of topics.
I'm new to this community, but not new to the hemophilia community. My father has it and my step mom is an advocate for women with bleeding disorders, she her self also has one.
I am 20 and currently pregnant with my first child. Its a boy! Which is why I have joined this community. I myself have pretty regular periods and am on the low end of normal for all my test counts and what not. But my dad is still convinced that I have a good chance of bleeding to death during labor. Pft, I'm much more worried about my little boy bleeding to death while I'm in labor.
I have some questions:
Are there any mothers of hemophiliacs on this comm?
Are there any hemophiliacs that would like to share the story of how they were born?
Are there any that are here in texas?
The thing that scares me the most is that i wont get the insurance and have the money to care for him if he is a hemophiliac. I heard the dallas treatment ceneter is awful. I was also wondering if any one knows of a state with a good treatment center. Or of a web site stating the ratings of treatment centers.
I would like to know if any are from Arizona, and how their treatment centers are.
also, i am very scared of the risk of my child getting hep c and what not from factor or a transfusion. my step moms son is like 20something and he got it. What are the odds today?